My company sent over a USB Modem to use while in the hospital- how cool is that? I can now get online here (no wireless at the hospital) to keep connected to the outside world. My company, Genesis Creative Group and coworkers have been so supportive over this last month of drama. They have been amazing.
Monday was a good day for us- Millie's teacher came over and brought letters from Millie's class, and conducted a science experiment with Millie and Griffin. That evening we went out to dinner- and I had 2 margaritas. Zowee. Here is a picture of our dinner excursion- check out the cape. Our friend Lizzie Leu (www.shoplavish.com) had one of her suppliers for her store make this for Millie.
We checked in to the hospital for 5 days of chemotherapy. The chemo goes for 2 hours- first a drug called Isosfamide for an hour, followed by Etoposide. They follow that with something called Mezna that helps keep Millie's bladder lining stable. The bladder is the squeakiest wheel in this chemotherapy process so far. Since she is being flooded with IV hydration, her bladder fills to the brink quickly. We had some issues last night- so for the next 4 nights I will try to wake her every 90 minutes to 2 hours to pee.
So far, she is doing ok after the first night- but she seems very pale to me. She also has some nausea and is pretty grumpy. It can be pretty defeating to be with a grumpy patient all day and night- so I am glad for this internet connection to reach outside these walls. (I just now learned of the earthquake in Haiti- so, so sad).
We checked in to the hospital for 5 days of chemotherapy. The chemo goes for 2 hours- first a drug called Isosfamide for an hour, followed by Etoposide. They follow that with something called Mezna that helps keep Millie's bladder lining stable. The bladder is the squeakiest wheel in this chemotherapy process so far. Since she is being flooded with IV hydration, her bladder fills to the brink quickly. We had some issues last night- so for the next 4 nights I will try to wake her every 90 minutes to 2 hours to pee.
So far, she is doing ok after the first night- but she seems very pale to me. She also has some nausea and is pretty grumpy. It can be pretty defeating to be with a grumpy patient all day and night- so I am glad for this internet connection to reach outside these walls. (I just now learned of the earthquake in Haiti- so, so sad).
Love and thanks to all for your thoughts and prayers for Millie, for other children battling cancer, and for all the children suffering and lost in Haiti.
Hi Millie,
ReplyDeleteIt is Caroline and Lisa sending you lots of love and good wishes! When you come home and if you are able Caroline would love to see you. I am coming by tomorrow for a visit so let your Mommy know if you want anything at all.
Love you much,
Lisa and Caroline :)
Just realized I can comment on here. A little slow! Glad for any extra activity for you. Love the cape...gotta love a little fabulousness. Love you and Millie. Glad we'll get to have some Griffy time on Friday, here at Legoland Petaluma. oxoxo Steph
ReplyDeleteHi Laura -
ReplyDeleteI'm so glad you are connected to the outside again - it will help you just seeing how many people are pulling for Millie - and for the whole family - count us in that group :) Stay strong and find the little bits of joy that scatter about, even in the hardest of times.
Love to you all -
Judy Hafdahl
Stay strong... I hope positive for Millie and the whole family every day.
ReplyDelete- tpg
We are thinking about you and sending our prayers your way. We are here if you need anything.
ReplyDeleteCarlin and Brian
Hi Millie. I'm a painter friend of your Grandmother, Andrea, and I want to say 'hello' to you and let you know that you and all your family are in my prayers. You are one cute little girl. You look adorable in pink, and especially that great looking pink cape!
ReplyDeleteJoyce Delario