Tuesday, December 29, 2009

Round 1


I'm home now, to be with Griffin. He's perfectly happy with his grandparents, but he usually has his sister around to keep him company. I'm going to have the Big Talk with him tomorrow. Although he knows a little bit, he'd like "to know more about it... when you're ready", he told me tonight. So we stayed up late, just the Bachelor Boys, snuggling on the day bed watching Star Wars: The Clone Wars episodes and tormenting the cat. He's on Winter Break so he can sleep in tomorrow - I haven't seen him in two days, so pardon my indulgence.

Millie has yet again proven herself the World's Best Patient. But... Monday was hell. She had surgery to place her Broviac Line* and it took entirely too long for us to endure, and they forgot to call us to be there when she woke up. Jerks! Luckily the social worker found us and got us up there within minutes... but all she could do was cry and say she wanted to go home, while sitting in surgery recovery room with a bunch of other patients, machinery and bustling post-op nurses. She even refused her popsicle this time. The only bit of levity we had was when they gave her an oral medicine to "relax" her pre-anaesthesia, and she got completely loopy as we put on her hospital gown and slippers and with a mischievous grin on her face tried to "go somewhere", like a drunken friend saying "Nonsense, let's get another drink! Where's the next bar?!" Shades of Millie at 21. ;)

When we finally got our room we were sandwiched between two families (separated only by curtains), one of a very loud and fearful older girl in some sort of vague pain and one of a 4-year-old finishing up brain tumor treatment (and doing well! hopeful, indeed). We kept her distracted and got her to eat, but she threw most of it up, and this was before the chemo. Finally they administered two kinds of chemo* and an anti-nausea drug at 10pm, and she fell into enough of a stupor to allow us to read to her until she fell asleep, but not before a pretty major breakdown and more whimpers of "I want to go home..."

Laura gave me the spare key to her brother's house in the Oakland hills to go "get some sleep" since they were still in Tahoe (thanks guys!) and I managed to drop off around 2am, to wake up to an 8am text from Laura: "Bring chapstick... and COFFEE!!!" I bolted back up to Kaiser still groggy, ditched the car and scoured Piedmont Ave. for decent java, finally having to settle on Peet's chain swill (beats hospital coffee, don't get me wrong). The girls were happy to see me. Neither had slept or eaten much but somehow daddy could elicit a smile here and there. In fact I couldn't believe how positive they both seemed - real f'n troupers, I tell ya. Millie had been gaining an ever-increasing appetite as well as watching 900 million DVDs and filling an entire coloring book, finally passing out into blissful nappy slumber for the better part of three hours while Laura and I got instruction in home maintenance of the Broviac Line* including line flushing, cap changing, dressing changing, and blood sample drawing. Oh, and a daily subcutaneous injection of CGSF* to keep her immunities up. Not a job for the squeamish - makes us wish for more hospital time.

But that's not true. We can't wait to be home. We can step up to the plate and do all that's required of us. Anyone who's ever picked infant vomit out of their hair or toddler diarrhea out of the carpet can do this, right... RIGHT?

So as I went to the visitor's lounge to get Millie a milk, who should I see but our dear friend and neighbor Tricia, who had come all the way from Petaluma with gifts and company for Millie (and Laura). How very lucky we are to have such great friends! I escorted her back and the girls chatted while I ran out to a nearby Japanese restaurant, hoping against hope that they had Millie's favorite meal: Chicken Katsu and white rice with soy sauce. They did! And some nice-looking nigiri for Laura. They were so nice, setting me up with a hot towel, a beer, some green tea and a California roll while I waited. I promised a longer return visit. Millie was stoked to see me return with what she calls her "Hiro's Special". The ladies seemed content as I headed out in the rain to head home and pick up Griffin from his grandparents. We hope to spend some quality time together Wednesday.

I pick up the girls Thursday, New Year's Eve morning. With any luck we'll go home, reunite, have a nice comfort meal and all crash in our own beds hours before midnight. There's even a tiny chance we'll venture out for the annual New Year's Day OysterFest at Heart's Desire Beach. Or maybe we'll all just stay in and play Candyland and Battleship all weekend. So when you're all out toasting with the bubbly, please think of us. We wish we could be there... but not this year.

* Laura may want to post the gory details of these devices and procedures, but I don't. Sleep well.

11 comments:

  1. Thanks for the update and keeping us all informed. Thought of you all so much on Monday. Glad to hear Millie will wake up in her own bed for the new year! Much love - Amy, Greg & Lincoln

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  2. Thanks for posting, Brian. We too have been thinking of you all constantly the last two days. I am so amazed at your strength and courage...keep it up! Yay Thursday!

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  3. Hey Brian, It's nice to hear your voice (in my mind anyway). Somehow it's comforting. You sound courageous, positive, and like you're gonna make shit happen if you have to drag it there with your teeth. Love it. All my best to sweet Millie, you, Laura, and Griffin.

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  4. And so it has begun. Your courage and candidness are both comforting and touching. I send blessings to that hospital room to my dear Laura and brave Millie. "This too shall pass"

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  5. Laura & Brian, I hope you don’t mind but the news of Millie and this blog had been forwarded to me recently. I have caught up on your block and want to send you my love and my strongest wishes to Millie for a speedy & full recovery. Thank you for sharing this most intimate time of yours. You and your family are in my thoughts daily.

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  6. Hi Laura and Brian,
    We have been thinking of you all non stop since Monday. Please know that we are here for you all when you come home. Please know that you can call us day or night to help with anything "medical".
    First three days done and gone. Remember you all can and will get through this journey. We send loving thoughts to Millie and all of you.

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  7. Thank you for sharing with us. Our hearts are with you every single step.
    RoseEllen Shea

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  8. Hi Laura (and Brian, although we have never met), Thinking of you as the family embarks on this incredible and courageous journey. Here's to strength, faith and an easier today and tomorrow. Please let me know if you need a shoulder or babysitter. I am a phone call away. Myra

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  9. Hello Friends. Thank you Brian for such a beautiful post. I smiled and laughed a few times. Laughter is good during tough times, and you seem
    to be following that rule of thumb. Good writing!

    My dad was checked into the hospital on Tuesday. He had pnemonia but seems to be making a solid recovery. I found myself thinking of you all so much during my hospital visits. How is Millie doing? What is she doing now? Is Laura spending the night with her? Are the nurses being nice and helpful? One of my dad's nurses was a real grouch, and I just was thinking that better us have her than Millie. And so on.

    I am glad that you and family will be home together on the last night of 2009 and starting off the New Year all together at home as it should be.

    Love from all of us in San Francisco.
    Birgit, Gary, Joad and Eliot

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  10. Hi!
    My son, Jackson, was in Millie's kindergarten class and saw her last week at Caroline's birthday party. Jackson has asked about Millie many times in the past week- please let her know that he is thinking of her.....
    You are in our thoughts and prayers!

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  11. I was able to visit Millie and Laura in the Hospital, and let me tell you first hand that Millie is truly amazing. She was so much braver then I could ever imagine. At times we even laughed out loud. She was being very silly while playing a board game about princesses.
    My friend Laura has been a rock. Although she has felt what I think has been very helpless in this battle and terrified by what's to come, she still keeps up her smile for Millie and positive attitude toward each day to come. As all parents, we give every last ounce of strength we have, to our children when they need it and don't even consider our own health and well being. Therefore I want to remind you, LAURA, when you think you can't endure anymore think about all the people who love you and draw strength from us. I love you all so much and feel grateful to have you in my life. Tricia

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