Millie has a pocket of about 2-3 inches in her right femur that is not producing marrow- it is just a blank spot. This may be what is happening in the other areas we saw on the bone scan as well. The doctors are just not sure what is causing this, but it could be one of 3 things:
1- The marrow is just depleted in these areas from chemotherapy, which does happen frequently- but not usually in such a defined area. Usually the bone marrow is mottled in spots where it is just depleted.
2- The areas are stressed out or slightly injured/fractured from the extra stress from her foot drop and time in the cast, favoring the right leg, etc.
3- Something else could be happening that is cancer related.
The decision to go for a biopsy lets them look at her marrow under the microscope for Ewings Sarcoma or any cancer cells. This means she has to be put under again next week for this procedure.
Today she did very well according to Brian and his mom, who took her to San Francisco for the MRI. She is in great spirits tonight, acting cute and cuddly and hungry.
Brian and I are hanging onto the doctors words that this does not look like any relapse he has ever seen. They certainly saw no tumors.
I am trying so hard to be positive, although I just want to throw up and crawl back under the covers.
Hang in there! You have come so far and been so successful this far. Get to sleep thinking of the gut instinct of the doctor. If they didn't see a tumor and he looks at a lot of these cases it is probably a false positive reading but something they have to take seriously do to the nature of her history. Sending all of our love.
ReplyDeleteHave been anxiously awaiting your Facebook posting all evening. Was so hoping you would get a definitive answer. The suspense has to be soooo taxing. Hang in there. Am sending BUNCHES of positive energy well. Love, Elizabeth
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ReplyDeleteSo relieved to hear this news. It sounds like they are so on top of things with Millie and are being cautious...just how we want them to be! Hang in there Bell Ways....we are sending hugs and kisses and positive vibes (and are anxiously awaiting updates). Much love, Lisa and the Rokes clan...
ReplyDeleteCan't stop thinking of you all. I'm glad that Millie's care providers are taking everything so seriously. This is a good thing. Sending so much love. Hang in there! xoxox Shawna
ReplyDeleteThinking of you guys! Hang in there. Big LOVE Chad
ReplyDeletei'm only thinking positive thoughts. sending you my love.
ReplyDeleteI know its hard, and yes I understand your feeling of wanting to throw up.. As a mum of a teenager who had a Synovial Sarcoma,similar to ewings I am told,, that is how I feel each time she has to have an MRI, CT or onocology ... Pray for your family and may your keeping up your strength to see this through...Great the docs cant seem any tumour..XX Nel
ReplyDeleteLaura and Brian - I'm home and can come in a heartbeat if there is anything I can do. Dinner in or out this week? Transportation? Let me know if there is anything I can do.
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Remember, statistics are on your side now. It probably doesn't make you feel better today, but the chances of recurrence with the regimen she received is very unlikely.
ReplyDeleteStay strong.
Sending you all loads of hugs and kisses. Thank you for continuing to share your story with us, Laura. xo, Sabrina, Chris, Madelyn and Nick Ernst
ReplyDeleteI'm thinking of you and the family and sending loads of hugs and positive thoughts your way. They're leaping over the GGB as we speak! OXOX's, Dale
ReplyDeletelaura bell - just a note to tell you that sue updates me about your daughter, millie - so hope everything goes well this time around. thinking of you and sending out those positive "white light" vibes.... love stella
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