Today Millie has been running a fever of about 100.5, has had no appetite or energy, and is grumpy beyond belief. I think her platelet count is way down, as her gums are bleeding when I brush her teeth. Mouth sores are common when white blood counts go down as well, which makes chemo patients reluctant to eat. Millie said her teeth hurt, and would not take a bite of dinner.
She dug into her energy reserves at bedtime, however, and gathered just enough to go into a full screaming panic about taking her medicine and getting her injection.
Brian and I (and probably Millie and Griffin too) feel overwhelmed by this chemotherapy schedule in front of us- the effects seem so very brutal to this little girl. And we've only gone through 1 round.
At this point it is only Wednesday, we have a week to go until we go to the hospital next and when they may administer some type of iv nutrition. I can only pray for some more good days between now and then. It seems so bleak today.
A wonderful thing did happen today, however. Arnie and Susan Cohen of the Carousel Fund came by for a supportive visit. They brought some cheery gifts for the children (Susan spent quite some time with Griffin, which was very nice) and a generous gift of financial assistance for us. Their gift will take care of Millie's medical bills for 2009- a looming Kaiser invoice that was hanging over us. Their visit got me out of my doldrums, as I straightened myself up a bit and even brushed my hair. We are so very very grateful to be supported by this amazing Petaluma charity.
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Hi Laura and Brian-
ReplyDeleteJust a note to say that we are keeping up with you through this website and through Andrea. We think of you so often and lots of positive energy is flowing your way every day. Just know that your beautiful family is cradled in the love and support of so many people - us included :) We are keeping you all in our hearts.
Rocky and Judy Hafdahl
We are continuing to send good thoughts your way and are so sorry that this day has been difficult. You will continue to be in our prayers. Let Millie know that once she is feeling better again, Jackson can't wait to introduce her to the world of Webkinz!
ReplyDeleteHi Laura and Brian,
ReplyDeleteCharlotte would love to come color or play board games with Millie whenever she is ready for a visit. We think of you everyday and send good thoughts and positive energy your way. Stay strong, you are amazing...
Alice & Charlotte